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Born2lbfat

My life with Lipedema & Lymphedema...destined to be fat.

Weight Loss Surgery Journey

July 30, 2013 by Sarah Bramblette 8 Comments

I had open RNY Gastric Bypass in April 2003 at The Ohio State University Medical Center. I was diagnosed and under treatment for Lymphedema since December 2001, however, I was not yet diagnosed or aware I had Lipedema. Gastric bypass surgery helped me lose the weight that was due to poor habits. I admit I have not always had the healthiest of habits, however, even before surgery I made MAJOR life changes, and while my overall health has greatly improved. Lipedema has taken its toll on my body and will be a lifelong battle.

My highest known weight was 502lbs. It was higher, however, the doctors did not have a scale that could weigh me. After several months of diet change and exercise I could tell by my clothes that I was losing weight and I so I went to a junk yard to use their scale and saw that despite my efforts I still weighed more than 500lbs. I opted to pursue weight loss surgery. I do believe losing weight has helped me maintain my lymphedema, and saved my life. As with any medical decision, having weight loss surgery is a personal decision best made between a patient and their physicians. I have read where many Lipedema patients have been pressured by their physicians to have weight loss surgery. Lipedema does not respond to diet and exercise, therefore, weight loss surgery will not improve fat in areas affected by lipedema.

saralicious

My 23rd Birthday, September 10, 2000

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rnyb4side

The morning of surgery.

I had reconstructive panniculectomy in December 2006. My weight was 280lbs. I eventually lost down to 250lbs.

rnyafterfront

rnyafterside

blackdress

February 2007

And then regain began…

regain

regain2September 2011

But that smile still stays the same!

Filed Under: Weight Loss Surgery Tagged With: bbw, beauty, featured, gastric bypass, headline, lipedema, lymphedema, morbid obesity, obesity, rny, rny gastric bypass, sbbw, self confidence, self esteem, super morbid obesity, weight lose surgery, wls

Two Bills, One Story

July 16, 2013 by Sarah Bramblette 3 Comments

capitalA journey of a thousand miles begins with a single step. – Chinese proverb

My journey began many years ago, the steps have been difficult at times but I kept moving forward. Now is the time to put the past decade of personal struggle into action in order to help others.

Currently there are two bills before Congress, or in the process or being introduced, to which I fully support and want to see passed into law.

H.R. 2415 Treat and Reduce Obesity Act of 2013 – On June 19, 2013, Senators Tom Carper (D-DE) and Lisa Murkowski (R-AK) and Representatives Bill Cassidy (R-LA) and Ron Kind (D-WI) introduced the Treat and Reduce Obesity Act of 2013. This legislation will provide Medicare recipients and their health care providers with meaningful tools to treat and reduce obesity by improving access to obesity screening and counseling services, and new prescription drugs for chronic weight management.

Lymphedema Treatment Act – The Lymphedema Diagnosis and Treatment Cost Saving Act will improve coverage for the treatment of lymphedema, thereby reducing health care costs while improving patient care and quality of life for millions of Americans with lymphedema.

Step 1: I have shared my personal story via Obesity Action Coalition and Lymphedema Treatment Act.

Step 2: I have contacted my Congressman, and Senators regarding both pieces of legislation. A few weeks ago I received a phone call from Rep. Wenstrup’s office in Washington, D.C. in response.

Step 3: This week my U.S. Representative Brad Wenstrup’s staff will be hosting a Traveling Help Desk in my area. I plan on attending to share my story in support of BOTH bills.

The power is in us to initiate change….please join me on the journey!

meindc

Filed Under: Advocacy, Blog Post, Health Insurance, Lipedema and Lymphedema, Obesity Tagged With: advocacy, breaking, featured, headline, lipedema, lymphedema, morbid obesity, obesity, obesity action coalition, top

Do these arms make my butt look big?

July 8, 2013 by Sarah Bramblette 1 Comment

orangedress

 Do these arms make my butt look big? 🙂

Ah the positive side to big arms, make the butt look small, cute and round…like the rest of me.

It’s SUMMER, get out and enjoy yourself!

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: bbw, beauty, breaking, featured, headline, lipedema, lymphedema, morbid obesity, obesity, sbbw, self confidence, self esteem, super morbid obesity, top

Mom, I Learned It By Watching You

July 2, 2013 by Sarah Bramblette 3 Comments

Remember this PSA from the 80s?

The tagline of the commercial came to mind as I read this article about how self hate is passed on to young women by their mothers.

The author, in a form of a letter to her “mum”, describes how she saw her mother as a “beautiful – in every sense of the word” until the day her mother called herself “fat, ugly and horrible”…and it had to be true because “mothers don’t lie”.

Tears streamed down my face as I read the article, and not for myself or for my own daughter (as I have no children), but for the many women I know who struggle with loving and accepting themselves. I was blessed to have a mother who was able to instill in me a very high level of self confidence. This was quite an accomplishment given I was an obese child. I honestly do not know how she did it, nor does she. She even ponders where all my confidence comes from, typically when she questions my decisive life decisions aka when we get in an argument. I’ve actually said to her “I learned this by watching you” or “you created this, you deal with it”. My mom managed to balance making accommodations for me as an obese child while still acknowledging my weight was a problem. Most importantly she never let me use my weight as an excuse, and she fought for what she believed was in my best interest. I took note of that, and that developed the advocate within me.

I am the youngest of five children. My mom, being the good Catholic mother she was, enrolled us all in the local Catholic school system. One problem, at age 5 I was already obese to the point the school uniforms were not available in sizes to fit me. My mother made arrangements for a family friend to make a uniform jumper for me. There was no fuss over this, I remember wearing a plain blue jumper to school until my special jumper was ready. I only recall one classmate asking me why I didn’t have a uniform, and it was a friendly inquiry. The next year when it came time for my First Communion, the same family friend made my dress. It was “Especially Made” for me for a special occasion of course, no fuss or comments about my size.

firstcommunion

 

Some people may think that by making such accommodations my mother was enabling my weight problem. I assure you, she was not. This very same year, 2nd grade, was actually when I first learned I was fat. I guess my older siblings telling me I “weighed 100lbs” never sank in as a reality. But then again I was a child, I had no concept of what a normal # weight was and I was active. We didn’t have 24 hour cartoon channels or video games, I rode my bike a lot, I loved recess! The school nurse attempted a weight intervention with me, but she was unsuccessful. Mostly because even though I now knew I was FAT, and I looked different than my peers, my FAT didn’t bother me. The following year my mom signed me up for a 6 week kids weight loss class at the local hospital. I remember the discussion about the choices we make for lunch, and it was assumed was all drank chocolate milk, I think I was the only kid in the course who already drank white milk, who liked vegetables, and who was somewhat active. Years later my mother told me the course instructors told her I’d “always be fat”. I was a bit stunned, but I guess their rationale was the reality, my weight did not bother me enough to change.

My mom still did not waiver, I had to walk to school, I had a paper route, and sometimes she just bluntly told me “you cannot eat the same as your friends”. In middle school my Girl Scout uniform had to be made. In high school my marching band uniform was altered to the point no more changes could be made and I eventually wore an alternate uniform. When I got my first real job, at Taco Bell, again there was not a uniform immediately available in my size so I wore a solid color shirt until a uniform was available. As an adult weighing more than 500lbs, when my best friend asked me to be a bridesmaid in her wedding I did as I knew how to do and had a dress made in the same fabric and color as the other bridesmaids.

My participation in an activity or major life event never hinged on my appearance. My mother saw the importance of my participating in LIFE verses trying to make an issue about my size. After all, the reality is my weight DID indeed keep from many other activities, I would have loved to have participated. Show choir is one that instantly comes to mind, I never even attempted to audition because I knew I could not dance, reality might be I didn’t not sing well enough either. I also never auditioned for the high school musicals, even through I had performed in several children theater plays. I did however, work the front of the house, or backstage for all the musicals. When I got the job at Taco Bell, my mother firmly told me that if I quit the job as might as well not even come home. So despite the difficult time I had being 400lbs and on my feet for 6-8 hour shifts, I worked and I was a good worker.

The point is, already being limited by my weight in many activities my mother made sure I was able to participate in life, the alternative would have been to do nothing? To sit at home and watch TV? If you think telling me I could not do something because I did not have the right outfit was going to motivate to change my appearance, HA! It was just going to motivate me to figure out a way to get it done despite my appearance.

Going back to grade school. Once in my Brownie Girl Scout troop the activity was crab walk. In order to get the in crab position the leader told us to do a back bend until our hands touched the ground behind us. I tried but was unable to do a back bend, the leader quickly told me I’d just have to sit out of the activity. Instead, I got down on the ground and pushed myself up into the crab position. There was more than one way to get to the goal. Tell me it can’t be done, I’ll figure out a way to do it. I am an excellent problem solver, perhaps that’s due to a life time of accommodating my weight, but it’s an excellent skill much needed in today’s society.

It seems I developed a lot of my current “fight” at a young age. It was also during second grade that I saw my mother stand up for what she believed was in my best interest. I had been placed in the lowest reading level group, during class one day the teacher told me to stand up and turn around to read aloud to the class. I did not face the direction she wanted me to face so she grabbed my arm and turned me. She squeezed my arm as she did so, and I began to cry. She immediately made me write a note home to my mother stating I was crying in class. Upon reading my note my mother asked me why I was crying and I told her that the teacher had pinched my arm. My mom wrote a note back to the teacher stating that I had told her the teacher had pinched my arm. The teacher was told me “You write a note back to your mother and tell her you lied to her, your arms are TOO FAT TO PINCH.” So I sat there sobbing writing another note to my mom telling her I lied, yet I was not able to correctly spell the words for the note. Once my mother got the second note, she was more determined to get to the bottom of  not only the incident but why I was in the class and not being taught at the level of my real potential.

But here is the key, she did not storm into the school and raise hell, she followed the procedure, she spoke to the Principal, discussed her concerns with my overall treatment and asked what it would take to get me out of that class. The answer was I had to be tutored over Christmas break so that I could be moved to the intermediate reading class. Now, my mom did not believe I needed tutoring, but she did as requested. After the new year I was in the intermediate class, and I was getting high grades. Actually, at the end of the year I was one of the outstanding scores on the standardized test for second grade. But that was not the end of it, my mother moved me and my two sisters to public schools after that year, and we all flourished in the new environment.

I can tell many stories of my mother taking the same approach and attitude when something needed TO GET DONE. No, she was not an overprotective or “helicopter mom” (that term or idea didn’t exist back then). She just took the reins when needed, sorted out a situation, and got decisions made.

I am proud to say I am a lot like my mother! She taught me the important things in life, appearance should not keep you from enjoying life, and be strong and stand up for what your believe is right.

 

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: advocacy, bbw, beauty, breaking, featured, headline, lipedema, lymphedema, morbid obesity, obesity, self confidence, self esteem, super morbid obesity, top

Being SUPER is not SUPER.

June 26, 2013 by Sarah Bramblette 4 Comments

superman-sarah

It’s a bird. It’s a plane. It’s SUPER SARAH!

SUPER MORBIDLY OBESE

It’s when you’re so FAT you’re past the standard Morbidly Obese category and are now SUPER Morbidly Obese. SMO is having a BMI (Body Mass Index) of 50 or over.

Why SUPER? Trust me it’s not SUPER. Especially not for me. Please do not read this wrong. I am me, I LOVE me, others love me. BUT it’s frustrating when many do not understand or relate to my situation.

As much self confidence as I have, I’ve actually never felt like I “fit in”. I’m unique, yes. That’s me. I can relate to well to others, I have always had many friends and acquaintances. I was never a part of the popular crowd in school, but I also wasn’t shunned or teased a lot like many overweight or obese kids. I was a band geek, I had my crew, I mean I was a DRUMMER…drummers are cool. Except I played the xylophone which meant I was on the sideline, so avoided the whole “marching” part of marching band. So I wasn’t really a part of the drum line, I actually sucked at keeping a steady beat, but I could whack them mallets. WATCH OUT!

It’s a theme throughout my life. I’m sorta part of the group, I can relate, but not completely. We often think everyone of certain groups should “get along” after all they have a shared common experience. Um…just look at families and you’ll understand why that theory is not true.

It’s especially not true in the world of obesity or weight loss surgery. While I have been obese 34 out of 35 years of my life (I was born a relatively normal 8lbs), I will say I have been a “member” of the obesity/weight lose surgery community for nearly a decade. That was the time I was exploring having RNY gastric bypass and joined an online weight lose surgery community. At first is was an AWESOME experience, I met so many other people LIKE ME, struggling with weight and seeking a solution. I met several people who had surgery with the same surgeon I would have and was able to find out specifics about his post-op expectations and support. The site, the community support was very helpful. Throughout the years I have made many wonderful, and now long time friends from the internet.

However, I also discovered the harsh reality of judgement within the WLS community. Since my highest weight was 502lbs, even losing a HALF my body weight, still left me in the Morbidly Obese category. I was once blamed for “eating myself THAT fat”, by a fellow WLSer. Well, isn’t that nice and understanding and supportive. Of course, I also have Lipedema, which I did not know  before undergoing WLS. So I’ve never been a SUCCESSFUL weight loss surgery patient, since I never reached “goal”, then I also regained 100lbs. So I must not be following the “rules”. Bad Sarah, such a failure.

Well a failure to people who measure success by weight and size. Not everyone thinks that way, as a matter of fact there is an entire Fat Acceptance movement. Fat Acceptance, where the name guarantees I’ll be accepted among them because I’m FAT, right?

Wrong.

I prefer Me Acceptance as I know many normal sized women who struggle with accepting themselves. I accept me and my fat, but I was also in denial about my HEALTH for many years. However, I’ve found that among the FA community I am judged because I had weight loss surgery. I attempted to not be fat, so I turned my back on the cause? Trust me baby got plenty of “back” to spare. I also have a different perspective about obesity being categorized as a disease and considered a disability. Those beliefs are based on my own personal experiences. I understand the fear and concern with negative labels, but I am also aware of the rights and power such labels can provide when needed. Sadly, I have needed both in my life, and to those who don’t understand, be thankful you’ve never been in the situations I’ve faced.

I feel like I’m stuck between two “communities” whose intentions are ones of empowerment and support, and yet because I do not fit specific expectations I am not fully accepted or understood. All I ask is before judging try to consider the other person’s perspective. I blog to share my story, I know I risk judgement by putting personal information out for public interpretation. I’m willing to take the risk for the chance to open some minds and eyes.

More awareness, to me, that would be SUPER.

 

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: advocacy, bbw, breaking, featured, gastric bypass, headline, lipedema, lymphedema, morbid obesity, obesity, rny, sbbw, self confidence, self esteem, super morbid obesity, top, weight bias, weight lose surgery

Donate to Walk from Obesity and I Will Walk in My Swimsuit

June 18, 2013 by Sarah Bramblette 1 Comment

$1000 Goal = Me walking in Swimsuit

Last year at the Walk from Obesity in Dallas, TX is was unusually COLD. Note the sweatshirts!

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This year I will once again be  walking as a member of Melting Mama’s BBGC  Team in  the Walk from Obesity during #YWM2013 in Phoenix, AZ…. in AUGUST, so I expect much warmer weather!  If I reach my goal of $1000 in donations by the morning of the walk, August 18th! I will WALK IN MY SWIMSUIT (and tutu).

Yes, the issue of possible thigh chaffing has been brought to my attention. I’ll be sure to pack extra Johnson & Johnson Pure Cornstarch Baby Powder. No worries!

The only thing I’m worried about is deciding which swimsuit to wear, I have close to 20!!!

swimsuits

Filed Under: Advocacy, Blog Post, Obesity Tagged With: advocacy, lipedema, morbid obesity, obesity, obesity action coalition, super morbid obesity, walk from obesity, weight bias, weight lose surgery, YWM2013

Orange Juice Cereal – Breakfast of Persistence

June 7, 2013 by Sarah Bramblette 2 Comments

ojs_cereal

I broke my blog yesterday. Well my friend made me break my blog. I was woken up by her text informing me I needed to permalink my urls. Whatever that means. No, she made sure to explain why I needed to do so, and included a helpful link to how to complete the task. I am above average computer savvy, and if I don’t know how to do something I will tinker and Google until I figure it out. My boyfriend is my IT department, he supports my desire to blog and kindly did the work to put my blog on a server and get me “set up”. While he is helpful, and a go to person when there are issues, I want to learn and understand this blog stuff on my own. So permalink url – I got this!

Click here, click there and bam DONE. I’m on separate IMs with friend and boyfriend. I quickly ask my friend to check a link for me. At the same time I proudly let boyfriend know of my new blog geek tech savvy status. Except well…404 Error. Yeah, as friend is telling me the link didn’t work. Boyfriend replies “can’t do that on the fly, it will give your links errors”. Yeah, now you tell me. And hey if you’re my IT why wasn’t this DONE when you set up my blog? And where’s my owner’s manual? I can go zero to frustrated in seconds. He actually teases me about how “someone so motivated and determined can get frustrated so easily”. He then says, “I’ll fix it tomorrow…off to class then work.” TOMORROW? I quickly, undo what I did and asked friend to check link and whew my blog was back to working order. I apologized to boyfriend, *slapped my hands* for messing around with my blog and told him I’d go eat my orange juice cereal.

Orange juice cereal? Yes, orange juice cereal, the breakfast of persistence. Ok, really the breakfast of impatience.

When I was three (yes I have a VERY good memory of my childhood, of everything really), my dad was making me breakfast one morning. He had poured me a bowl of cereal and a glass of orange juice but something distracted him before he could put milk on my cereal. Since I could not pour the gallon of milk by myself (I might have spilled that and made a mess), I opted instead to pour my glass of orange juice on my cereal. Liquid is liquid right? Of course, my dad was not happy and would not let me waste the cereal so I had to eat it, orange and all. To this day I do not like orange juice.

So I started thinking, WOW, I was that impatient at age 3? Patience is not a virtue I have, I know this, it’s weird to look back and see evidence of such trait when I was a toddler. I struggle with finding a balance between if you want something make it happen, and “anything worth having is worth waiting for”…I mean which is it? I know it depends on the situation. And it is a balance. Most of all try to gather as much information as possible and make an informed decision. My frustration typically stems from me doing JUST THAT and things still not working. Tech stuff is the worse, I once took a website design course and it put my laptop in a lot of danger of going out the window on several occasions.

Yes, I can be impatient but it’s because I’m doing the work to get things done, so I want it done and I want to do it correctly. I’m not just sitting around waiting for good things to come to me, I’m seeking them out, inviting them in. I’m researching, I’m learning, I’m trying. When I think of all I’ve learned through the challenges I’ve over come I realize with every struggle I build upon my skill set.

My mentor once said of me “a challenge is just Sarah’s next accomplishment.” True. I might get frustrated, I might need to ask for help and guidance but in the end I will succeed.

So maybe every once in awhile I have to “eat my orange juice cereal”, wouldn’t it be worse to go through life hungry?

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: advocacy, breaking, headline, lipedema, lymphedema, morbid obesity, self confidence, self esteem

I Support The Lymphedema Treatment Act

June 6, 2013 by Sarah Bramblette 9 Comments

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In 2010 I shared My Story in support of The Lymphedema Treatment Act. The bill did not make it through the congressional process at that time and must be re-introduced. I am committed to using my newly acquired advocacy skills to help make this act a LAW.

WHY THIS LEGISLATION IS NEEDED:

  • Lymphedema is a non-curable but treatable medical condition that results in an accumulation of lymph fluid swelling in parts of the body where lymphatic vessels and/or lymph nodes are damaged, nonfunctional or inadequate. Lymphedema affects an estimated 5-6 million Americans, with the majority of cases caused by cancer treatment.
  • Untreated, or under-treated, lymphedema is progressive and leads to increased morbidity. Complete Decongestive Therapy (CDT) is the gold standard and only known course of treatment for lymphedema. CDT is a multi-modal treatment that is only effective when used in its entirety.
  • Medicare currently covers all but the most critical component, the medically necessary compression supplies used daily in lymphedema treatment, citing they do not fit under any existing benefit category. As a result, many patients suffer from recurrent infections, progressive degradation in their condition and eventual disability because they cannot afford the compression supplies required to maintain their condition.

WHAT THIS LEGISLATION WILL DO:

Although this legislation relates specifically to a change in Medicare law, it would set a precedent for Medicaid and private insurers to follow.

Specific goals of the Act are:

  • Provide comprehensive lymphedema treatment coverage, according to current medical treatment standards;
  • Enable patient self-treatment plan adherence by providing necessary medical supplies for use at home, as prescribed for each patient (including gradient compression garments, bandages, and other compression devices);
  • Allow for new treatment modalities to be considered for coverage as they become available and are approved;
  • Reduce the total healthcare costs associated with this disease by decreasing the incidence of complications, co-morbidities and disabilities resulting from this medical condition.

In case you need a refresher on how the process works:

A quick one-page reference on the Lymphedema Treatment Act. To get involved visit: http://lymphedematreatmentact.org/

 

Filed Under: Advocacy, Blog Post, Health Insurance, Lipedema and Lymphedema, Obesity Tagged With: advocacy, breaking, featured, headline, lipedema, lymphedema, lymphedema treatment act, morbid obesity, obesity, obesity action coalition, top

June is Lipedema Awareness Month

June 3, 2013 by Sarah Bramblette 8 Comments

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June is Lipedema (Lipoedema in UK/AUS) Awareness Month so I thought I’d post some helpful information and resources. I recently found many of these pages and Facebook groups and finally feel like I belong, there ARE others out there who understand.

WebMD (we’re FINALLY on WebMD) describes Lipedema as a condition that affects up to 11% of women. It occurs when fat is deposited abnormally beneath the skin, usually in the buttocks and legs. Although it begins as a cosmetic concern, it can progress to cause pain and other problems.

Excellent video:

Dr. Karen Herbst for Cure Lipedema Awareness PSA

Here are some informative websites/links:

Cure Lipedema – http://www.curelipedema.org/

Lipoedema UK – http://www.lipoedemaladies.com/

Dr. Herbst’s website – http://www.lipomadoc.org/lipedema.html

Fat Disorders Research Society – http://www.fatdisorders.org/fat-disorders/lipedema-description

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Fellow Lipedema Bloggers:

Big Leg Woman – http://www.biglegwoman.com/

Living with the Lip – http://lipedemagirl.tumblr.com/

Molly Peterson – http://www.mollympeterson.com/2012/11/i-have-lipedema/

Born2lbFat Living with Lipedema posts – http://born2lbfat.com/?cat=90

Do you have a Lipedema/Lipoedema website or blog to recommend? Please share it in the comments section. I will update this post with suggestions!

Filed Under: Advocacy, Living with Lipedema & Lymphedema Tagged With: advocacy, featured, headline, lipedema, lipoedema, morbid obesity, obesity, super morbid obesity, top, weight bias

My Guide to the Perfect Beach Body

May 24, 2013 by Sarah Bramblette 25 Comments

hammock

Relaxing in Key West

It’s Memorial Day Weekend, the Unofficial Kick Off to Summer! Are you ready for the beach? I am! Last weekend I unpacked my summer wardrobe and found no fewer than 10 swimsuits! My best friend pointed out that I have equal number of sunglasses and beach towels to match each suit. She knows me so well!

Since I am more than prepared for the warmer weather I wanted to share my advice for how to get that PERFECT BEACH BODY:

1. Pick out a cute swimsuit – I suggest trying on various styles to find the suit that flatters your figure and features. I know many women default to skirted bottoms to “hide” their legs and hips. In my case, skirts do not flatter my hips, and lets be honest nothing is going to hide my legs…and be safe to swim in. There are however many options, out there, swim board shorts, rash guard shirts.  And of course this season’s FATKINI by Gabi Gregg,  if you are lucky enough to get your hands on one.  I found the halter top neckline looks nice on me, draws attention to me face which is one of my BEST features.

2. Put on your cute swimsuit – add a nice pair of sunglasses and sun screen!

3. Go to the beach – or the pool, lake, river, water park (I love Typhoon Lagoon…and looking forward to OAC at AZ Grand)

4. Smile – have fun, enjoy your day.

There is no such thing as a PERFECT body, no shake, or DVD is going to make you perfect. I learned long ago that people will comment on my appearance whether I am in a swimsuit or fully clothed, so I pay them no mind. Life is too short to keep worrying about what others think, ENJOY YOUR SUMMER!

 

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: advocacy, bbw, beauty, lipedema, lipoedema, lymphedema, morbid obesity, obesity, plus size clothing, sbbw

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