June is Lipedema (Lipoedema in UK/AUS) Awareness Month so I thought I’d post some helpful information and resources. I recently found many of these pages and Facebook groups and finally feel like I belong, there ARE others out there who understand.
WebMD (we’re FINALLY on WebMD) describes Lipedema as a condition that affects up to 11% of women. It occurs when fat is deposited abnormally beneath the skin, usually in the buttocks and legs. Although it begins as a cosmetic concern, it can progress to cause pain and other problems.
Excellent video:
Dr. Karen Herbst for Cure Lipedema Awareness PSA
Here are some informative websites/links:
Cure Lipedema - http://www.curelipedema.org/
Lipedema Simplified - http://www.lipedema-simplified.org/
Lipoedema UK - http://www.lipoedemaladies.com/
Dr. Herbst’s website - http://www.lipomadoc.org/lipedema.html
Fat Disorders Research Society - http://www.fatdisorders.org/follow-up-to-living-life-with-lipedema/
Fellow Lipedema Bloggers:
Big Leg Woman - http://www.biglegwoman.com/
Living with the Lip - http://lipedemagirl.tumblr.com/
Molly Peterson - http://www.mollympeterson.com/2012/11/i-have-lipedema/
Born2lbFat Living with Lipedema posts - http://born2lbfat.com/?cat=90
Do you have a Lipedema/Lipoedema website or blog to recommend? Please share it in the comments section. I will update this post with suggestions!
Hello, Loving your site
I’m starting a FB support group for people with rare fat disorders in the Pacific and Australia. I myself have Dercum’s disease and most likely lipedema as well, though i have not been diagnosed, very hard to get diagnosed here in NZ. I’m wanting to put together a list of blogers who like yourself are living with a rare fat disorder. Are you happy for me to paste a link in my groups documents?
much Love B
Thank you. Yes, please share! Spread the word!
Another group you might not know about is LASS . It is an Australian support group for women with Lipoedema. Contact us on http://www.lass.org.au and women can join our online support group . We also have meetings where members meet up for lunch or coffee. Great news is our first conference in March 2013.
Keep up the great work
I will add you to my list! Thanks for giving me the information. I’d LOVE to come visit you all in person someday!