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Born2lbfat

My life with Lipedema & Lymphedema...destined to be fat.

YOU Can Still Be a Part of #YWM2013 – Join Us!

August 8, 2013 by Sarah Bramblette Leave a Comment

oacsiteIt’s not too late to  be a part of Obesity Action Coalition Your Weight Matters Convention!

Registration will be available on-site August 15th. Join us for a day or the entire event.

Can’t join us in Phoenix?

No worries there will be 5 sessions  live-streamed via YouTube!

Here is the link to access all of the live-streamed educational sessions: 

http://www.ywmconvention.com/ywm2013-live-stream/  

During the Teaming-Up to Tackle Obesity event, those who can’t attend will also be able to ask questions during the Q&A using http://www.twitter.com/obesityaction and our official #YWM2013 hashtag.

LivestreamScheduleGraphic_forweb

This is a great opportunity to experience OAC and get a glimpse of what the information and resources they offer.

Check out my Top 5 Reasons YOU Should Attend #YWM2013 and watch for my LIVE updates from the convention on Twitter, Facebook, and Instagram.

Filed Under: Blog Post, Weight Loss Surgery Tagged With: advocacy, bbw, breaking, featured, gastric bypass, headline, health insurance, lipedema, lymphedema, morbid obesity, obesity, obesity action coalition, rny gastric bypass, sbbw, super morbid obesity, top, weight bias, weight loss surgery, YWM2013

Featured on ObesityHelp

August 1, 2013 by Sarah Bramblette 5 Comments

screenshot-OH-advocacy

I am honored to be today’s featured article on ObesityHelp.com – Advocate: A Decade in the Making. I have been a member of ObesityHelp since 2003 and have attended 7 of their events. October 4th & 5th I will attending the ObesityHelp 2013 National Conference in Anaheim, CA.

ObesityHelp asked me to share my experience and struggle with Lymphedema and Lipedema. Including fighting for insurance coverage of needed treatments. Both conditions affect individuals struggling with obesity, including those seeking weight loss surgery. Many like myself, are not aware they have Lipedema until after having weight loss surgery and noticing that despite massive weight loss their legs are still abnormally large.

Filed Under: Advocacy, Blog Post, Health Insurance, Lipedema and Lymphedema, Obesity Tagged With: advocacy, appeals, bbw, beauty, breaking, featured, gastric bypass, headline, health insurance, lipedema, lymphedema, morbid obesity, obesity, rny, rny gastric bypass, sbbw, self confidence, self esteem, super morbid obesity, top, weight lose surgery, wls

Weight Loss Surgery Journey

July 30, 2013 by Sarah Bramblette 8 Comments

I had open RNY Gastric Bypass in April 2003 at The Ohio State University Medical Center. I was diagnosed and under treatment for Lymphedema since December 2001, however, I was not yet diagnosed or aware I had Lipedema. Gastric bypass surgery helped me lose the weight that was due to poor habits. I admit I have not always had the healthiest of habits, however, even before surgery I made MAJOR life changes, and while my overall health has greatly improved. Lipedema has taken its toll on my body and will be a lifelong battle.

My highest known weight was 502lbs. It was higher, however, the doctors did not have a scale that could weigh me. After several months of diet change and exercise I could tell by my clothes that I was losing weight and I so I went to a junk yard to use their scale and saw that despite my efforts I still weighed more than 500lbs. I opted to pursue weight loss surgery. I do believe losing weight has helped me maintain my lymphedema, and saved my life. As with any medical decision, having weight loss surgery is a personal decision best made between a patient and their physicians. I have read where many Lipedema patients have been pressured by their physicians to have weight loss surgery. Lipedema does not respond to diet and exercise, therefore, weight loss surgery will not improve fat in areas affected by lipedema.

saralicious

My 23rd Birthday, September 10, 2000

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The morning of surgery.

I had reconstructive panniculectomy in December 2006. My weight was 280lbs. I eventually lost down to 250lbs.

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rnyafterside

blackdress

February 2007

And then regain began…

regain

regain2September 2011

But that smile still stays the same!

Filed Under: Weight Loss Surgery Tagged With: bbw, beauty, featured, gastric bypass, headline, lipedema, lymphedema, morbid obesity, obesity, rny, rny gastric bypass, sbbw, self confidence, self esteem, super morbid obesity, weight lose surgery, wls

Dear Boy Scouts of America, Participation is More Powerful than Exclusion

July 17, 2013 by Sarah Bramblette Leave a Comment

Go Big. Get Wild. But not you, you're too big.

Go Big. Get Wild. But not you, you’re too big.

As a member of the Obesity Action Coalition, I received a Bias Buster Alert regarding the Boy Scouts of America’s BMI policy excluding participation in this years Jamboree.

Below is my letter to CEO, Wayne Brock. I encourage you to speak out on this issue and contact Mr. Brock. More information can be found on the OAC Bias Buster page: http://www.obesityaction.org/weight-bias-and-stigma/bias-busters/boy-scouts-of-america

Dear Mr. Brock,

As a member of the Obesity Action Coalition, I am writing to express my disappointment in the Boy Scouts of America’s BMI policy for attendees of the 2013 Jamboree. I live in southern Ohio, near the border of West Virginia, so I have seen a lot of local news coverage about the Summit and the excitement for this year’s Jamboree. It saddens me to know young men are being excluded from this “Wild and Wonderful” experience simply based on their weight.

I understand the BSA’s concern for health and safety, however, BMI is not a good indicator of health. As a morbidly obese child and teen I participated in many activities including attending 4H Summer camp. My cabin was at the top of the second hill, the restrooms and showers were on the first hill. Was it easy for me to climb the hills several times a day? Of course not, but I did it because I wanted to participate in camp, and as the days went by the climb became easier and I gained a sense of accomplishment. I participated in many camp activities, and there were of course some I was unable to participate in because of my weight, however, just being there and seeing all the possibilities motivated me to be more active so I could participate the following summer. If BSA were truly concerned with the overall health and wellbeing of your scouts you would encourage participation in the Jamboree no matter the fitness level. After all, HEALTH is more than just physical, there is also emotional and social element to health and wellness. Which is really better for health: these young men participating at the Jamboree with their peers, or sitting at home?

I also wanted to point out that many children and adults of normal size can suffer health emergencies during strenuous activities. I was in marching band and never once had an emergency while many friends often had asthma attacks after a performance. Also, consider the sad occurrence of children and adults with unknown cardiac issues collapsing during sporting events.

In addition, I am interested to know if Boy Scouts with other physical limitations are excluded from participating in the Jamboree? Are Boy Scouts with physical disabilities that require use of a wheelchair or other accommodations able to participate? I do hope the answer is, yes. If accommodations are being made for their inclusion than accommodations should be made so that ALL scouts can participate.

I look forward to your review of this policy and forthcoming changes.

Sincerely,

Sarah M. Bramblette

OAC Member

Filed Under: Advocacy, Blog Post, Obesity Tagged With: advocacy, bmi, body mass index, boy scouts of america, discrimination, featured, headline, jamboree, morbid obesity, obesity, obesity action coalition, super morbid obesity, top, weight bias

Do these arms make my butt look big?

July 8, 2013 by Sarah Bramblette 1 Comment

orangedress

 Do these arms make my butt look big? 🙂

Ah the positive side to big arms, make the butt look small, cute and round…like the rest of me.

It’s SUMMER, get out and enjoy yourself!

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: bbw, beauty, breaking, featured, headline, lipedema, lymphedema, morbid obesity, obesity, sbbw, self confidence, self esteem, super morbid obesity, top

Mom, I Learned It By Watching You

July 2, 2013 by Sarah Bramblette 3 Comments

Remember this PSA from the 80s?

The tagline of the commercial came to mind as I read this article about how self hate is passed on to young women by their mothers.

The author, in a form of a letter to her “mum”, describes how she saw her mother as a “beautiful – in every sense of the word” until the day her mother called herself “fat, ugly and horrible”…and it had to be true because “mothers don’t lie”.

Tears streamed down my face as I read the article, and not for myself or for my own daughter (as I have no children), but for the many women I know who struggle with loving and accepting themselves. I was blessed to have a mother who was able to instill in me a very high level of self confidence. This was quite an accomplishment given I was an obese child. I honestly do not know how she did it, nor does she. She even ponders where all my confidence comes from, typically when she questions my decisive life decisions aka when we get in an argument. I’ve actually said to her “I learned this by watching you” or “you created this, you deal with it”. My mom managed to balance making accommodations for me as an obese child while still acknowledging my weight was a problem. Most importantly she never let me use my weight as an excuse, and she fought for what she believed was in my best interest. I took note of that, and that developed the advocate within me.

I am the youngest of five children. My mom, being the good Catholic mother she was, enrolled us all in the local Catholic school system. One problem, at age 5 I was already obese to the point the school uniforms were not available in sizes to fit me. My mother made arrangements for a family friend to make a uniform jumper for me. There was no fuss over this, I remember wearing a plain blue jumper to school until my special jumper was ready. I only recall one classmate asking me why I didn’t have a uniform, and it was a friendly inquiry. The next year when it came time for my First Communion, the same family friend made my dress. It was “Especially Made” for me for a special occasion of course, no fuss or comments about my size.

firstcommunion

 

Some people may think that by making such accommodations my mother was enabling my weight problem. I assure you, she was not. This very same year, 2nd grade, was actually when I first learned I was fat. I guess my older siblings telling me I “weighed 100lbs” never sank in as a reality. But then again I was a child, I had no concept of what a normal # weight was and I was active. We didn’t have 24 hour cartoon channels or video games, I rode my bike a lot, I loved recess! The school nurse attempted a weight intervention with me, but she was unsuccessful. Mostly because even though I now knew I was FAT, and I looked different than my peers, my FAT didn’t bother me. The following year my mom signed me up for a 6 week kids weight loss class at the local hospital. I remember the discussion about the choices we make for lunch, and it was assumed was all drank chocolate milk, I think I was the only kid in the course who already drank white milk, who liked vegetables, and who was somewhat active. Years later my mother told me the course instructors told her I’d “always be fat”. I was a bit stunned, but I guess their rationale was the reality, my weight did not bother me enough to change.

My mom still did not waiver, I had to walk to school, I had a paper route, and sometimes she just bluntly told me “you cannot eat the same as your friends”. In middle school my Girl Scout uniform had to be made. In high school my marching band uniform was altered to the point no more changes could be made and I eventually wore an alternate uniform. When I got my first real job, at Taco Bell, again there was not a uniform immediately available in my size so I wore a solid color shirt until a uniform was available. As an adult weighing more than 500lbs, when my best friend asked me to be a bridesmaid in her wedding I did as I knew how to do and had a dress made in the same fabric and color as the other bridesmaids.

My participation in an activity or major life event never hinged on my appearance. My mother saw the importance of my participating in LIFE verses trying to make an issue about my size. After all, the reality is my weight DID indeed keep from many other activities, I would have loved to have participated. Show choir is one that instantly comes to mind, I never even attempted to audition because I knew I could not dance, reality might be I didn’t not sing well enough either. I also never auditioned for the high school musicals, even through I had performed in several children theater plays. I did however, work the front of the house, or backstage for all the musicals. When I got the job at Taco Bell, my mother firmly told me that if I quit the job as might as well not even come home. So despite the difficult time I had being 400lbs and on my feet for 6-8 hour shifts, I worked and I was a good worker.

The point is, already being limited by my weight in many activities my mother made sure I was able to participate in life, the alternative would have been to do nothing? To sit at home and watch TV? If you think telling me I could not do something because I did not have the right outfit was going to motivate to change my appearance, HA! It was just going to motivate me to figure out a way to get it done despite my appearance.

Going back to grade school. Once in my Brownie Girl Scout troop the activity was crab walk. In order to get the in crab position the leader told us to do a back bend until our hands touched the ground behind us. I tried but was unable to do a back bend, the leader quickly told me I’d just have to sit out of the activity. Instead, I got down on the ground and pushed myself up into the crab position. There was more than one way to get to the goal. Tell me it can’t be done, I’ll figure out a way to do it. I am an excellent problem solver, perhaps that’s due to a life time of accommodating my weight, but it’s an excellent skill much needed in today’s society.

It seems I developed a lot of my current “fight” at a young age. It was also during second grade that I saw my mother stand up for what she believed was in my best interest. I had been placed in the lowest reading level group, during class one day the teacher told me to stand up and turn around to read aloud to the class. I did not face the direction she wanted me to face so she grabbed my arm and turned me. She squeezed my arm as she did so, and I began to cry. She immediately made me write a note home to my mother stating I was crying in class. Upon reading my note my mother asked me why I was crying and I told her that the teacher had pinched my arm. My mom wrote a note back to the teacher stating that I had told her the teacher had pinched my arm. The teacher was told me “You write a note back to your mother and tell her you lied to her, your arms are TOO FAT TO PINCH.” So I sat there sobbing writing another note to my mom telling her I lied, yet I was not able to correctly spell the words for the note. Once my mother got the second note, she was more determined to get to the bottom of  not only the incident but why I was in the class and not being taught at the level of my real potential.

But here is the key, she did not storm into the school and raise hell, she followed the procedure, she spoke to the Principal, discussed her concerns with my overall treatment and asked what it would take to get me out of that class. The answer was I had to be tutored over Christmas break so that I could be moved to the intermediate reading class. Now, my mom did not believe I needed tutoring, but she did as requested. After the new year I was in the intermediate class, and I was getting high grades. Actually, at the end of the year I was one of the outstanding scores on the standardized test for second grade. But that was not the end of it, my mother moved me and my two sisters to public schools after that year, and we all flourished in the new environment.

I can tell many stories of my mother taking the same approach and attitude when something needed TO GET DONE. No, she was not an overprotective or “helicopter mom” (that term or idea didn’t exist back then). She just took the reins when needed, sorted out a situation, and got decisions made.

I am proud to say I am a lot like my mother! She taught me the important things in life, appearance should not keep you from enjoying life, and be strong and stand up for what your believe is right.

 

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: advocacy, bbw, beauty, breaking, featured, headline, lipedema, lymphedema, morbid obesity, obesity, self confidence, self esteem, super morbid obesity, top

Being SUPER is not SUPER.

June 26, 2013 by Sarah Bramblette 4 Comments

superman-sarah

It’s a bird. It’s a plane. It’s SUPER SARAH!

SUPER MORBIDLY OBESE

It’s when you’re so FAT you’re past the standard Morbidly Obese category and are now SUPER Morbidly Obese. SMO is having a BMI (Body Mass Index) of 50 or over.

Why SUPER? Trust me it’s not SUPER. Especially not for me. Please do not read this wrong. I am me, I LOVE me, others love me. BUT it’s frustrating when many do not understand or relate to my situation.

As much self confidence as I have, I’ve actually never felt like I “fit in”. I’m unique, yes. That’s me. I can relate to well to others, I have always had many friends and acquaintances. I was never a part of the popular crowd in school, but I also wasn’t shunned or teased a lot like many overweight or obese kids. I was a band geek, I had my crew, I mean I was a DRUMMER…drummers are cool. Except I played the xylophone which meant I was on the sideline, so avoided the whole “marching” part of marching band. So I wasn’t really a part of the drum line, I actually sucked at keeping a steady beat, but I could whack them mallets. WATCH OUT!

It’s a theme throughout my life. I’m sorta part of the group, I can relate, but not completely. We often think everyone of certain groups should “get along” after all they have a shared common experience. Um…just look at families and you’ll understand why that theory is not true.

It’s especially not true in the world of obesity or weight loss surgery. While I have been obese 34 out of 35 years of my life (I was born a relatively normal 8lbs), I will say I have been a “member” of the obesity/weight lose surgery community for nearly a decade. That was the time I was exploring having RNY gastric bypass and joined an online weight lose surgery community. At first is was an AWESOME experience, I met so many other people LIKE ME, struggling with weight and seeking a solution. I met several people who had surgery with the same surgeon I would have and was able to find out specifics about his post-op expectations and support. The site, the community support was very helpful. Throughout the years I have made many wonderful, and now long time friends from the internet.

However, I also discovered the harsh reality of judgement within the WLS community. Since my highest weight was 502lbs, even losing a HALF my body weight, still left me in the Morbidly Obese category. I was once blamed for “eating myself THAT fat”, by a fellow WLSer. Well, isn’t that nice and understanding and supportive. Of course, I also have Lipedema, which I did not know  before undergoing WLS. So I’ve never been a SUCCESSFUL weight loss surgery patient, since I never reached “goal”, then I also regained 100lbs. So I must not be following the “rules”. Bad Sarah, such a failure.

Well a failure to people who measure success by weight and size. Not everyone thinks that way, as a matter of fact there is an entire Fat Acceptance movement. Fat Acceptance, where the name guarantees I’ll be accepted among them because I’m FAT, right?

Wrong.

I prefer Me Acceptance as I know many normal sized women who struggle with accepting themselves. I accept me and my fat, but I was also in denial about my HEALTH for many years. However, I’ve found that among the FA community I am judged because I had weight loss surgery. I attempted to not be fat, so I turned my back on the cause? Trust me baby got plenty of “back” to spare. I also have a different perspective about obesity being categorized as a disease and considered a disability. Those beliefs are based on my own personal experiences. I understand the fear and concern with negative labels, but I am also aware of the rights and power such labels can provide when needed. Sadly, I have needed both in my life, and to those who don’t understand, be thankful you’ve never been in the situations I’ve faced.

I feel like I’m stuck between two “communities” whose intentions are ones of empowerment and support, and yet because I do not fit specific expectations I am not fully accepted or understood. All I ask is before judging try to consider the other person’s perspective. I blog to share my story, I know I risk judgement by putting personal information out for public interpretation. I’m willing to take the risk for the chance to open some minds and eyes.

More awareness, to me, that would be SUPER.

 

Filed Under: Blog Post, Living with Lipedema & Lymphedema Tagged With: advocacy, bbw, breaking, featured, gastric bypass, headline, lipedema, lymphedema, morbid obesity, obesity, rny, sbbw, self confidence, self esteem, super morbid obesity, top, weight bias, weight lose surgery

Donate to Walk from Obesity and I Will Walk in My Swimsuit

June 18, 2013 by Sarah Bramblette 1 Comment

$1000 Goal = Me walking in Swimsuit

Last year at the Walk from Obesity in Dallas, TX is was unusually COLD. Note the sweatshirts!

DSC04257

This year I will once again be  walking as a member of Melting Mama’s BBGC  Team in  the Walk from Obesity during #YWM2013 in Phoenix, AZ…. in AUGUST, so I expect much warmer weather!  If I reach my goal of $1000 in donations by the morning of the walk, August 18th! I will WALK IN MY SWIMSUIT (and tutu).

Yes, the issue of possible thigh chaffing has been brought to my attention. I’ll be sure to pack extra Johnson & Johnson Pure Cornstarch Baby Powder. No worries!

The only thing I’m worried about is deciding which swimsuit to wear, I have close to 20!!!

swimsuits

Filed Under: Advocacy, Blog Post, Obesity Tagged With: advocacy, lipedema, morbid obesity, obesity, obesity action coalition, super morbid obesity, walk from obesity, weight bias, weight lose surgery, YWM2013

Top 5 Reasons YOU Should Attend OAC’s #YWM2013

June 13, 2013 by Sarah Bramblette 3 Comments

OAC YWM Badge

This year the Obesity Action Coalition is hosting the 2nd Annual Your Weight Matters National Convention, August 15-18 in Phoenix, AZ. I guarantee it will be a life changing weekend! In an attempt to convince you, I have listed my Top 5 Reasons You Should Attend #YWM2013.

#5 – YOU will MOVE during the fitness classes. A variety of fitness classes will be offered during the conference so if you already have an exercise routine the trip will not interrupt your activities. If you have yet to find a workout you enjoy this is the PERFECT opportunity to TRY new exercises in an accepting environment. Last year I attended the Yoga class, to my surprise I already OWNED the instructors DVD, I had just never attempted it. Now that I have participated in the class I am more confident in doing the moves correctly at home. Perhaps you are not quite ready for a structured fitness class or “hello, I don’t exercise on ‘vacation'”, that’s o.k. you will still MOVE during the Sunday morning Walk From Obesity.

If you are not able to participate in the Walk From Obesity, please support my participation by making a donation in my name.

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#4 – YOU will MEET people just like YOU. No matter where you are on your journey to health there are others who are right there, or have been there. I have been to several weight related conferences in the past 9 years and have met many wonderful people, and made several friends like my pals Eggface and MeltingMama, and yet at each new event I attend I meet and make new friends. Do not be afraid about “being alone” at the event, I assure you, YOU ARE NOT ALONE. We are all in this together, and we are stronger when we join our voices and stories with the OAC. Plus you never know when some weird chick who eats ketchup on her boiled egg asks if she can sit with you at breakfast. <— That was me making a new friend, Asha.

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#3 – YOU will EAT Lunch with the Experts. Last year I made the mistake of not signing up for Lunch with the Experts, I thought lunch time might be a good time to give my lipedema legs some rest. I quickly realized what I was missing out on, and was able to sign up for an open lunch spot on site at the conference. So if in doubt I suggest SIGN UP NOW…many Lunch with the Experts sessions are already FULL. This lunch gives you the chance to discuss important topics in a small (approx 10) group setting with an expert in the field.  Click on the image to view the #YWM2013 Agenda with a list of Lunch with the Experts topics:

agenda

#2 – YOU will DANCE. Yes, you will! As I mentioned in #5, this is your chance to try new things in an open, accepting, non-judgement environment. Friday night’s Welcoming Event with be a! So use your imagination to come up with a really awesome costume, or just come as you are. Just be there, and shake your groove thing! And see if I can keep my title as reigning costume winner! I won as  Honey Boo Boo last year, complete with Go Go Juice and Glitzy!

SarahBooBoo

#1 – YOU will ADVOCATE for Obesity! I strongly encourage you to attend the Advocacy Training. It was by far my favorite part of attending the Inaugural Your Weight Matters Conference in Dallas, TX. Even if you are not able to participate in the Advocacy Training you are still advocating just by attending the #YWM2013. Sharing your story with others, empowering yourself to pursue your health goals, fighting against weight bias and stigma are all important pieces of advocacy. Advocacy against weight stigma and bias is one of the main reasons I joined the Obesity Action Coalition. You can read my story, The Part I Want: Advocate in the Your Weight Matters Magazine 2013. Watch my personal testimonial about the Inaugural YWM Conference.

 

But most of all ATTEND #YMW2013 because YOUR Weight Matters!!!!

If my Top 5 Reasons successfully convinced you to register for #YWM2013 Convention, contact the OAC in writing at convention@obesityaction.org and tell them Sarah from Born2lbFat referred you so I can be entered into the YWM2013 Recruitment CHALLENGE. Thank you in advance!!!!

Filed Under: Advocacy, Blog Post, Obesity Tagged With: advocacy, discrimination, featured, gastric bypass, headline, morbid obesity, obesity, obesity action coalition, super morbid obesity, top, weight bias, weight bias in the workplace, weight lose surgery, YWM2013

June is Lipedema Awareness Month

June 3, 2013 by Sarah Bramblette 8 Comments

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June is Lipedema (Lipoedema in UK/AUS) Awareness Month so I thought I’d post some helpful information and resources. I recently found many of these pages and Facebook groups and finally feel like I belong, there ARE others out there who understand.

WebMD (we’re FINALLY on WebMD) describes Lipedema as a condition that affects up to 11% of women. It occurs when fat is deposited abnormally beneath the skin, usually in the buttocks and legs. Although it begins as a cosmetic concern, it can progress to cause pain and other problems.

Excellent video:

Dr. Karen Herbst for Cure Lipedema Awareness PSA

Here are some informative websites/links:

Cure Lipedema – http://www.curelipedema.org/

Lipoedema UK – http://www.lipoedemaladies.com/

Dr. Herbst’s website – http://www.lipomadoc.org/lipedema.html

Fat Disorders Research Society – http://www.fatdisorders.org/fat-disorders/lipedema-description

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Fellow Lipedema Bloggers:

Big Leg Woman – http://www.biglegwoman.com/

Living with the Lip – http://lipedemagirl.tumblr.com/

Molly Peterson – http://www.mollympeterson.com/2012/11/i-have-lipedema/

Born2lbFat Living with Lipedema posts – http://born2lbfat.com/?cat=90

Do you have a Lipedema/Lipoedema website or blog to recommend? Please share it in the comments section. I will update this post with suggestions!

Filed Under: Advocacy, Living with Lipedema & Lymphedema Tagged With: advocacy, featured, headline, lipedema, lipoedema, morbid obesity, obesity, super morbid obesity, top, weight bias

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